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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I keep getting very painful of what I call cramp in my toes. When I say painful I mean painful. My toes move, it happened again yesterday, there I was sitting on the settee, gritting my teeth, moaning, husband asked what was the matter, I just said look at my toes.
Is this RA or just cramp? Does it happen to others? Sometimes one toe goes under the other making it stick up, sometimes they just move to one side. My husband did ask yesterday.....What would you do if the happened while you are driving?
I'm sure I have read something simular along time ago about toes.
Paula x x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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OOOch Paula I can sympathise. My ankles started doing the same thing at night, they would just curl up inwards and be excruciatingly painful. My GP prescribed Quinnine tablets and it stopped it completely. Might be worth a try? YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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Oh that sounds very painfull, would say get to the gp and try them tablets as suggested cause like yor husband said what if driving
oh you get something to stop it
love Txxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Oh golly, Paula - this is HORRID and yes, it happens to me too. I know Jenni has it as well. She says it's when her toes do the "Hitler" salute!! When this hapens to me, I get Steve to pull my toes and (OK it hurts like hell) but it certainly helps. Love Jeanxxxx PS I'm on Hydrowhatsit, Julie, but it hasn't stopped mine? Mind you, I always was odd, wasn't I?  
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Rank: Advanced Member Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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jeanb wrote:Oh golly, Paula - this is HORRID and yes, it happens to me too. I know Jenni has it as well. She says it's when her toes do the "Hitler" salute!! When this hapens to me, I get Steve to pull my toes and (OK it hurts like hell) but it certainly helps. Love Jeanxxxx PS I'm on Hydrowhatsit, Julie, but it hasn't stopped mine? Mind you, I always was odd, wasn't I? I have Quinnine tho Jean? YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi
I have heard that it is to do with the changes in the foot in response to chronic inflammation- fallen arches etc. some people say to have a glass of tonic water (For hydration and quinine) other people say its to do with potassium so have a square of chocolate, a banana etc.
I have found this technique helpful
Take a spoon to bed with you, but keep it out where it will be room temperature. When you get a cramp, place the bowl of the spoon against the affected area. The metal of the spoon will quickly extract heat from the body. This will work if your cramp is in your ankle, calf, or toe.
Jenni xx how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Ouch!!! my toes sometimes really hurt, and feel like they are "stuck" in one position, sometimes the big toes go under. Thanks for the ideas of help, will try the spoon one!! BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Paula Seems liek RA,id ask rheumy nurse take look maybe,and try jennis spoon idea. thanks posting,casue mine been doign that years now,my right foot big toe and left big toe permantley stuck upwards cartn wear canvas shoes as poke hole threw them. i use warm water and getnle rubbing to ease the cramps,it happened before and during my arches dropping. lovely old RA not! incorrect footwear in past added to this the cramps spread up my calfs. hope eases. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Please take care if trying quinine, it interacts with some drugs, can't remember which right now, but I know I can't have it. I think it might be the drugs for high blood pressure, will try and find out.
Lyn
PS - have just looked on the web for info, couldn't find much apart from it makes tinnitus worse. Maybe that's what I was thinking of.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Thank you all for your quick response.
Interesting what Jenni said about fallen arches, have been told mine have. Think I will try the chocolate, a bar might just do the trick.
I am to see my nurse soon (first appointment after starting MTX). It will be on my list to ask her. It's happened a few times with my thumb, it moved right under the palm of my hand. Not so painful but the concentration I had to have to move my thumb back into place was unbelievable.
Driving.......well I've now got a good excuse to sit back and let him to do it!!!!!
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 90
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Hi Carol,
With me it is the big toe. It always happens in the middle of the night. I can feel, it is twisting and definitely moving. OUCH!!! It really hurts. My husband also suffers from cramps in his legs at night. With him, I think it is his diabetes.
The only thing, that helps me is getting out of bed a.s.a.p and stamp my foot. I am on hydrx...., which is quinine. Maybe it is helping me a bit, as I don`t seem to have had it for a little while.
Merete
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Rank: Advanced Member
Groups: Registered
Joined: 1/27/2010
Posts: 75
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HI Paula Yes I get this alot!!!! Toes pointing bolt upright  Think the chocolate remedy will be worth a shot for me  Clairex
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Paula,
I get exactly the same thing! But speaking of driving ... I've found I get it more commonly if I've been doing a lot of driving or at least more than normal. I don't know what causes it but it's bl**dy sore and I sympathise wholeheartedly x x x
Joanna
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